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alexion

Senior Patient Advocacy Manager The Nordics & Netherlands

Location: Stockholm, Sweden; Copenhagen, Denmark; The Hague, Netherlands Job reference: R-199880 Date posted: 05/16/2024

Senior Patient Advocacy Manager

The Nordics & Netherlands

Location:

Stockholm, Copenhagen or The Hague

This is what you will do:

Our vision in CENE is to leave no rare disease patient behind in every therapeutic area in which we operate, hence actively supporting equity of access to innovation across all the region and transform and improve patients lives.

The role will report into the CENE Area VP, the local Country Director or the Patient Advocacy Director of Alexion Central and Northern Europe (CENE).

As Senior Manager Patient Advocacy Nordics & Netherlands, you will be responsible for leading Alexion’s patient advocacy group partnerships, patient engagement and insights efforts and execute local plans across our therapeutic areas (Hematology/Nephrology, Rare Neurology and Metabolic diseases) and across the four Nordic countries and the Netherlands.

You will be responsible for:

 As an active member of the local cross-functional teams, bringing the Patient insights into the detailed understanding of the local Patient journeys and Disease plans for each therapeutic area. Based on the country specific identified patient journey issues, identify the critical areas for patient engagement and develop and implementthe patient advocacy plans in the Nordics and Netherlands across the therapeutic areas of interest to Alexion.

 Building and maintainingsustainable relationships with patient advocacy organizations (PAGs) in the areas of interest to Alexion.

 Lead local patient support programs in close collaboration with Medical teams and external stakeholders. Carrying out strategic patient advocacy programs and partnerships related to disease awareness and education, diagnosis, access to appropriate care, in close collaboration with the cross-functional team.

 Facilitate and coordinate  the engagement of PAGs data generation initiatives (HEOR/ MR/RWE) as well as in relation to local HTA processes or other post-marketing initiatives, in close partnership with Medical Affairs and Market Access teams.

 Represent Alexion at local PAG events, seminars and conferences.

 In partnership with communications and public policy, support and facilitate  the patient advocacy group voice in policy engagement.

 Based on local needs assessment, ensure the development and carry out Patient Advisory Boards, insight-generation sessions and/or surveys with patient representatives, patients, and caregivers, in close collaboration with the cross-functional team.

 Educate internal stakeholders in the Nordics and Netherlands on the role of PAGs and our standards of working with PAGs; champion the patient voice and experience at the local level and ensure that patient perspectives are reflected in our thinking and approaches.

 Manage and track PAG sponsorships & other key administrative and budget processes in CENE; support the annual disclosure of PAG funding in Alexion Nordics and Netherlands as appropriate. Ensuring ethically sound and compliant collaboration with PAGs, following local regulatatory guidelines.

 Support the patient advocacy functional efforts across the CENE region as the business requires, under the coordination of the CENE Patient Advocacy Director.

You will need to have:

 A passion for improving patients lives

 5+ years of related experience in Pharmaceuticals, within Patient Advocacy/Engagement/Policy departments, or within Medical, Access or Marketing, preferably in (but not limited to) rare diseases

 University degree required

 Knowledge of the rare disease patient advocacy community in the Nordics and/or the Netherlands along with proven track record of successful interactions with patient advocacy groups

 Understanding of the medicine’s R&D and commercialization process and opportunities for patients and patient advocacy groups to contribute to such processes

 Sound understanding of the legal and regulatory compliance environment (e.g. Industry codes) impacting the pharma/bio industry and interaction with patient advocacy groups

 Team player excelling in a strong cross-functional environment, empathetic to patients and carers, with good contextual understanding internally and externally, pro-active to excel in a rapidly changing environment

 Proven track record in project management and stakeholder management – delivering on multi stakeholder projects and working cross-functionally

 Willingness to travel (30-40%) across the Nordics and Netherlands as required

 Fluent in English and at least one of the Nordic languages or Dutch, written and spoken

 Demonstrating the ability to take initiative and consistently deliver high-quality work

 Advanced user skills in standard office software applications

AstraZeneca embraces diversity and equality of opportunity. We are committed to building an inclusive and diverse team representing all backgrounds, with as wide a range of perspectives as possible, and harnessing industry-leading skills. We believe that the more inclusive we are, the better our work will be. We welcome and consider applications to join our team from all qualified candidates, regardless of their characteristics. We comply with all applicable laws and regulations on non-discrimination in employment (and recruitment), as well as work authorization and employment eligibility verification requirements.

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